Letter to the editor


Last updated 3/31/2018 at 1:39pm

Dear Editor,

I wanted to say how pleased I was to see the article about Rare Disease Day, by Assemblymember Marie Waldron. It is vital to let the public know what that means. I have a rare disease, called AL amyloidosis. While doctors study about it in medical school, it is rare to find one who had treated someone with it. It took me about a year of reporting symptoms, which are similar symptoms to many conditions, before one doctor finally took additional tests to look for something other than the obvious.

Fortunately he fast tracked me to two medical specialists; one of whom added addi...

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